Neurostatus-UHB Neurostatus Support Portal

General FAQ

Neurostatus EDSS

What is the difference between the Neurostatus-EDSS and Kurtzke-EDSS?
The Neurostatus-EDSS is a disability status scale that summarizes the assessment of seven Functional Systems (FS) and the ambulation score (AS) in patients affected by multiple sclerosis (MS) or other demyelinating diseases. Each FS consists of a set of subscores representing the neurological physical examination and patient's reported symptoms. The final EDSS step is calculated based on the FS scores (FSS) and AS in a previously standardized method (EDSS scoring table).

The Neurostatus-EDSS was developed, standardized, and adapted from the version of J. Kurtzke's 1983 scale, with the aim not to modify but to further improve inter- and intra-rater reliability and consistency in assessments by providing less ambiguous definitions of the grades than those provided by the original scale. Until now, the Neurostatus-EDSS has been adopted in more than 200 phase II and III RCTs in MS, which includes most pivotal trials that led to approval of current DMT.

Account

Can I create an account?
No, the use of NeuroCert is invite-only.

My email has changed and I can’t access the system any more
If you remember your email and password, you can log in and update your email address.

If you forgot your password and can't use self-service reset, use this form to request a password change.

I have not received the email for account activation
Please reach out to Neurostatus Support to clarify.

I have forgotten my password
If you have forgotten your password, follow the “Forgot password” link on the log in screen. A link to set a new password will be sent to the registered email address. Follow the instructions in the email.

If you don’t have access to the email address registered, please fill this form.

I don’t have access to the registered email address anymore
Fill out this form.

Can you send me my password?
No, your current password cannot be sent, however, we can send a link to set a new one.

I have gotten a password reset link even though I have not requested it
Please reach out to Neurostatus Support.

I need to change my name, DOB, country of origin
Please reach out to Neurostatus Support.

I cannot log in

  • Are you using the registered email address?
  • Did you mistype your email address when changing it?
  • Users of the previous system: Did you use your username? The system now uses the email address.

What does the registration look like?

  1. You are invited by a Study Administrator
  2. You fill out the registration form
  3. We verify your account
  4. Your account is active

My account has been rejected due to a supposed duplicate?
We avoid duplicates for your own protection.

If you are not the owner of another account, respond to the email you have received.

How do I change my email?
If you remember your email and password, you can log in and update your email address.

If you forgot your password and can't use self-service reset, use this form to request a password change.

Joining a study

Can I join a study by my own action?
No. One of the Sponsor’s appointed Study Administrators must invite you.

Where can I get to know about current studies so I can maximize the benefit of my efforts?
Check clinicaltrials.gov, Clinical Trials in the European Union - EMA and similar platforms

Can I participate in more than one study at a time?
Yes. Have the Study Administrators of the other studies invite you. Please ensure they use the email address you have registered in NeuroCert.

How can I join a study?
Not yet invited? Then contact the sponsor or CRO and have one of the study’s Study Administrators invite you; be sure to provide them with the email address you use on the NeuroCert platform.

Already invited? Then accept the study invitation (see manual).

Do I have to retake the NeuroCert if I want to participate in another study?
No, unless your exam results do not meet the criteria established by the other study.

Certificates

Why can’t I download certificates for a given study/rater? The study/rater is listed but the download does not seem to work.
There are several possible reasons

  • The rater has not accepted the study invite yet. In this case the study assignment status is “invited”. The rater has to log in on NeuroCert and accept the invite
  • The rater has not obtained a certificate that meets the study’s certification criteria (level and re-training terms). The rater must pass an exam first.